哮喘联盟

   摘要
   一位35岁的女士在一次哮喘急性发作后参加了她的哮喘回顾。有大量的证据支持哮喘患者的自我管理，国际和国家的指南均强调提供书面哮喘行动计划的重要性。从一个患者、医疗专业人士和医疗组织的角度考虑对病例中的这位女士有效地实施该建议。患者强调在诚实守信基础上发展合作关系的重要性，同时需要监测和定期治疗的依从性以及家庭支持。专业人士推荐在严谨的评估基础上提供哮喘自我管理，侧重于对自我管理进行讨论，从而得出患者的目标和偏好。该组织在促进，实现和提供资源，支持专业人士提供自我管理方面起着关键作用。这个患者通过两次严谨的评估，判定了她的哮喘控制情况，并优化了哮喘管理。她的目标是避免影响她的工作，而她的个体化行动计划专注于实现这一目标。
 

（苏欣 审校）
NPJ Prim Care Respir Med. 2014 Oct 16;24:14063. doi: 10.1038/npjpcrm.2014.63.


 

A woman with asthma: a whole systems approach to supporting self-management.
 

Pinnock H1, Ehrlich E1, Hoskins G2, Tomlins R3.
 

ABSTRACT
A 35-year-old lady attends for review of her asthma following an acute exacerbation. There is an extensive evidence base for supported self-management for people living with asthma, and international and national guidelines emphasise the importance of providing a written asthma action plan. Effective implementation of this recommendation for the lady in this case study is considered from the perspective of a patient, healthcare professional, and the organisation. The patient emphasises the importance of developing a partnership based on honesty and trust, the need for adherence to monitoring and regular treatment, and involvement of family support. The professional considers the provision of asthma self-management in the context of a structured review, with a focus on a self-management discussion which elicits the patient's goals and preferences. The organisation has a crucial role in promoting, enabling and providing resources to support professionals to provide self-management. The patient's asthma control was assessed and management optimised in two structured reviews. Her goal was to avoid disruption to her work and her personalised action plan focused on achieving that goal.
 

NPJ Prim Care Respir Med. 2014 Oct 16;24:14063. doi: 10.1038/npjpcrm.2014.63.