哮喘联盟

   摘要
   背景：健康素养已被公认为影响健康行为和健康预后的一个重要因素。然而，它的定义仍在不断地发展，并且可以用来评估的工具在范围上是有限的。基于健康赋权模型中健康素养的概念，本研究开发和验证了一个用于评估哮喘患者在自我管理范围内对健康知识的运用水平的工具。
   方法：本文综述哮喘自我管理的科学素养并随访多名胸肺科医生和哮喘患者。通过这些，在基于场景的问卷调查中，起草和组配19个场景，每个场景配有4个应对方案。此外，进行3轮Delphi（集成开发环境）流程来检验12位肺部疾病专家对工具的使用情况。
   结果：通过与2例肺病患者和5例患者的面对面访谈观察该工具的形式和内容效度。通过三轮Delphi流程确定专家对于应对方案是否足够达成共识。最终的工具的内相关系数（ICC）为0.97，表明专家对于应对方案的等级持强烈一致态度。单个场景的ICC范围为0.92-0.99。
   结论：新开发的工具基于专家的共识，可以代表患者对健康知识的运用水平并提供一个最后的评分。此工具有助于丰富对更高级的健康素养维度的评估。
 

（苏楠 审校）
 Arch Public Health. 2014 Apr 1;72(1):12. doi: 10.1186/2049-3258-72-12.

 

Judgment skills, a missing component in health literacy: development of a tool for asthma patients in the Italian-speaking region of Switzerland.
 

Moreno Londoño AM1, Schulz PJ.
 

ABSTRACT
BACKGROUND: Health literacy has been recognized as an important factor influencing health behaviors and health outcomes. However, its definition is still evolving, and the tools available for its measurement are limited in scope. Based on the conceptualization of health literacy within the Health Empowerment Model, the present study developed and validated a tool to assess patient's health knowledge use, within the context of asthma self-management.
METHODS: A review of scientific literature on asthma self-management, and several interviews with pulmonologists and asthma patients were conducted. From these, 19 scenarios with 4 response options each were drafted and assembled in a scenario-based questionnaire. Furthermore, a three round Delphi procedure was carried out, to validate the tool with the participation of 12 specialists in lung diseases.
RESULTS: The face and content validity of the tool were achieved by face-to-face interviews with 2 pulmonologists and 5 patients. Consensus among the specialists on the adequacy of the response options was achieved after the three round Delphi procedure. The final tool has a 0.97 intra-class correlation coefficient (ICC), indicating a strong level of agreement among experts on the ratings of the response options. The ICC for single scenarios, range from 0.92 to 0.99.
CONCLUSIONS: The newly developed tool provides a final score representing patient's health knowledge use, based on the specialist's consensus. This tool contributes to enriching the measurement of a more advanced health literacy dimension.
 

Arch Public Health. 2014 Apr 1;72(1):12. doi: 10.1186/2049-3258-72-12.