评估儿童和青少年哮喘患者生活质量的特定工具
2013/07/17
摘要
目的：本研究旨在确定和描述用于评估儿童和青少年哮喘患者健康相关生活质量(HRQoL)的特定工具
数据来源：在PubMed、Ovid和LILACS数据库中使用不同组合的关键词（MeSH 主题词）进行检索，筛选1990年至2012年使用英语、葡萄牙语或西班牙语发表的有关HRQoL问卷调查的原始文章。
数据汇总：共有15种测定工具符合入选标准。大多数研究是通过内部一致性、再现性和/或敏感性的变化来评估可靠度。有效性评估则通过比较健康对照 (不一致的有效性)或因素分析来测定。
结论：在15种测定方法中，有三种最常用，分别为：小儿哮喘生存质量问卷量量表(PAQLQ)、儿童哮喘生存质量测定量表4.0(PedsQL-Asthma)和残疾儿童量表(DISABKIDS)。一般而言，这三种测定工具具有足够的心理测量特征及可实用性。但PAQLQ量表从文化的角度上分析更适合巴西人使用。
Specific instruments to assess quality of life in children and adolescents with asthma.
Roncada C, Mattiello R, Pitrez PM, Sarria EE.
Abstract
OBJECTIVE: To identify and describe specific instruments to assess health-related quality of life (HRQoL) in children and adolescents with asthma.
DATA SOURCE: Searches were performed in the PubMed, Ovid, and LILACS databases using different combinations of key words (MeSH terms), selecting original articles on the development of specific HRQoL questionnaires, published in English, Portuguese, or Spanish, between 1990 and 2012.
DATA SYNTHESIS: A total of 15 instruments that met the inclusion criteria were identified. Most studies assessed reliability through internal consistency, reproducibility, and/or sensitivity to changes. Validity was assessed by comparison with healthy controls (discordant validity) or factorial analysis.
CONCLUSIONS: Of the 15 instruments, three are the most frequently used: Pediatric Asthma Quality of Life Questionnaire (PAQLQ), Pediatric Quality of Life Inventory 4.0 (PedsQL-Asthma), and Disability Kids (DISABKIDS). In general, these three tools have adequate psychometric characteristics and are practical to implement, but only PAQLQ has been culturally adapted to Brazil.
JPediatr(RioJ).2013Apr26.pii:S0021-7557(13)00060-0.doi:10.1016/j.jped.2012.11.010. [Epub ahead of print]
目的：本研究旨在确定和描述用于评估儿童和青少年哮喘患者健康相关生活质量(HRQoL)的特定工具
数据来源：在PubMed、Ovid和LILACS数据库中使用不同组合的关键词（MeSH 主题词）进行检索，筛选1990年至2012年使用英语、葡萄牙语或西班牙语发表的有关HRQoL问卷调查的原始文章。
数据汇总：共有15种测定工具符合入选标准。大多数研究是通过内部一致性、再现性和/或敏感性的变化来评估可靠度。有效性评估则通过比较健康对照 (不一致的有效性)或因素分析来测定。
结论：在15种测定方法中，有三种最常用，分别为：小儿哮喘生存质量问卷量量表(PAQLQ)、儿童哮喘生存质量测定量表4.0(PedsQL-Asthma)和残疾儿童量表(DISABKIDS)。一般而言，这三种测定工具具有足够的心理测量特征及可实用性。但PAQLQ量表从文化的角度上分析更适合巴西人使用。
（苏楠 审校）
JPediatr(RioJ).2013Apr26.pii:S0021-7557(13)00060-0.doi:10.1016/j.jped.2012.11.010. [Epub ahead of print]
JPediatr(RioJ).2013Apr26.pii:S0021-7557(13)00060-0.doi:10.1016/j.jped.2012.11.010. [Epub ahead of print]
Specific instruments to assess quality of life in children and adolescents with asthma.
Roncada C, Mattiello R, Pitrez PM, Sarria EE.
Abstract
OBJECTIVE: To identify and describe specific instruments to assess health-related quality of life (HRQoL) in children and adolescents with asthma.
DATA SOURCE: Searches were performed in the PubMed, Ovid, and LILACS databases using different combinations of key words (MeSH terms), selecting original articles on the development of specific HRQoL questionnaires, published in English, Portuguese, or Spanish, between 1990 and 2012.
DATA SYNTHESIS: A total of 15 instruments that met the inclusion criteria were identified. Most studies assessed reliability through internal consistency, reproducibility, and/or sensitivity to changes. Validity was assessed by comparison with healthy controls (discordant validity) or factorial analysis.
CONCLUSIONS: Of the 15 instruments, three are the most frequently used: Pediatric Asthma Quality of Life Questionnaire (PAQLQ), Pediatric Quality of Life Inventory 4.0 (PedsQL-Asthma), and Disability Kids (DISABKIDS). In general, these three tools have adequate psychometric characteristics and are practical to implement, but only PAQLQ has been culturally adapted to Brazil.
JPediatr(RioJ).2013Apr26.pii:S0021-7557(13)00060-0.doi:10.1016/j.jped.2012.11.010. [Epub ahead of print]
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