哮喘联盟

   摘要
   背景：随着儿童成长为青少年，用药依从率普遍下降。对于青少年来说，缺乏有效的干预措施来增强依从性。本研究的目的是评估青少年哮喘患者对主要来自新媒体的医疗咨询和医疗支持的需求和偏好。
   方法：从初级与二级医疗保健机构招募了21名哮喘青少年患者，集中分成三个小组以探索哮喘自我管理的需求和偏好。问题包括依从行为和通过新媒体（如移动技术、社交媒体、健康游戏等）获得依从性支持的需求和偏好。
   结果：遗忘是没有按照处方规定服用药物的主要原因，此外，青少年缺少按时服药需求及获益的认识。家长在提醒青少年按时服药和及时买药中起到了很重要的作用。推荐的支持自我管理的策略包括有提醒功能并能方便地访问网络信息的智能手机应用程序，参与者积极地与其他青少年分享经验。
   结论：遗忘是青少年缺乏依从性的一个主要原因。此外，我们的研究结果表明同龄人之间的交流可能有助于促进良好的药物使用。今后的干预措施应旨在提供实用的提醒措施，并适合个人的喜好。


 

（苏欣 审校）
J Asthma. 2015 Jun 2:1-7. [Epub ahead of print]
 

"I just forget to take it": asthma self-management needs and preferences in adolescents.
 

Koster ES1, Philbert D, de Vries TW, van Dijk L, Bouvy ML.
Author information
 

Abstract
BACKGROUND:Medication adherence rates often decline as children become teenagers. Effective adherence-enhancing interventions for adolescents are lacking. The objective of this study was to assess adolescent asthmatics needs and preferences regarding medication counseling and support, with focus on new media.
METHODS:Three focus groups including 21 asthmatic adolescents recruited from both primary and secondary care were held to explore needs and preferences regarding asthma-self management. Questions concerned adherence behavior and needs and preferences in adherence support with focus on new media (mobile technology, social media, health games).
RESULTS:Forgetting was mentioned as major reason for not using medication as prescribed. Adolescents also mentioned lack of perceived need or beneficial effects. Parents mainly play a role in reminding to take medication and collecting refills. The suggested strategies to support self-management included smartphone applications with a reminder function and easy access to online information. Participants were positive about sharing of experiences with other teenagers.
CONCLUSION:Forgetfulness is a major reason for non-adherence in adolescents. Furthermore, our results suggest use of peer support may be helpful in promoting good medication use. Future interventions should be aimed at providing practical reminders and should be modifiable to individual preferences.
 

J Asthma. 2015 Jun 2:1-7. [Epub ahead of print]