哮喘联盟

   摘要
   背景：患者和护理提供者对于哮喘和哮喘护理的认知差异会成为成功治疗的障碍。本项定性研究的首要目的是：作为一项更大的哮喘疗效比较研究的一部分，进一步探讨患者和护理提供者对于哮喘和哮喘护理的认知。
   方法：举办6个月一次的为期3年的座谈会，组织患者和护理提供者参加，围绕对哮喘护理的独特理解进行讨论。
   结果：讨论主要集中在目标设定、哮喘行动计划和哮喘急性发作的预防策略。三个主题和多个分专题是本研究的主要发现。三个主题是成本/经济障碍/进程，自我管理/依从性和教育。
   结论：这些主题提示：需要对患者围绕哮喘进行教育性干预，需要对护理提供者围绕成本、保险覆盖和以患者为中心的交流进行教育。特别是，以下教育将使患者在哮喘的长期管理方面受益：学习怎样正确使用吸入器、避免诱发因素和理解控制用药的重要性。
 

（杨冬 审校）
J Asthma. 2015 May 15:1-8. [Epub ahead of print]


 

Patients' and providers' perceptions of asthma and asthma care: a qualitative study.
 

Mowrer JL1, Tapp H, Ludden T, Kuhn L, Taylor Y, Courtlandt C, Alkhazraji T, Reeves K, Steuerwald M, Andrew M, Dulin M.
 

Abstract
BACKGROUND:Differences in patients' and providers' perceptions of asthma and asthma care can create barriers to successful treatment. The primary goal of this qualitative study was to further explore patient and provider perceptions of asthma and asthma care as part of a larger Asthma Comparative Effectiveness Study.
METHODS:Focus groups held every 6 months for 3 years were designed to have a mix of both patients and providers allowing for unique understanding around asthma care.
RESULTS:The discussion centered on goal setting, asthma action plans and prevention strategies for asthma exacerbations. Three overarching themes, with a variety of subthemes, emerged as the main findings of this study. The three main themes were Cost/Economic Barriers/Process, Self-Governance/Adherence and Education.
CONCLUSIONS:These themes indicated a strong need for patient educational interventions around asthmaas well as education for providers around cost, insurance coverage and patient-centered communication. Specifically, education on learning to use inhalers properly, avoiding triggers and understanding the importance of a controller medication will benefit patients in the long-term management of asthma.
 

J Asthma. 2015 May 15:1-8. [Epub ahead of print]