哮喘联盟

   摘要
   背景:哮喘是世界上最常见的慢性疾病之一， 先前的研究已经报道了控制水平较低。哮喘线上资源使用和有效性的最新进展可提高患者认知并有助于改善控制水平。
   目的：在使用了互联网和社会媒体的真实患者人群中，调查通过症状水平、哮喘急性发作和GINA定义的哮喘控制的评估，是否能改善哮喘控制。同时也评估了患者对哮喘控制和态度的认知。
   方法：网上调查来自11个欧洲国家的8000例哮喘患者(年龄18～50岁，过去2年内⩾2次医药处方，社会媒体使用者)。
   结果：哮喘控制水平低：45%的受访者哮喘未控制。急性发作普遍：44%的受访者过去12个月内由于哮喘使用过口服糖皮质激素，24%的受访者有过急诊室就诊，12%住过院。超过80%的受访者(全部有急性发作史者)认为他们的哮喘得到了控制。有急性发作需要口服糖皮质激素者中，75%的人认为他们的哮喘并不严重。
   结论：在欧洲哮喘控制仍然不乐观；哮喘症状和急性发作普遍存在。尽管有哮喘症状和急性发作，但许多患者认为他们的哮喘并不严重并且得到了控制。有必要评估患者的控制情况、危险因素和吸入器使用技术，并确保患者按处方采取适当的治疗。
 

（林江涛 审校）
NPJ Prim Care Respir Med. 2014 Jun 12;24:14009. doi: 10.1038/npjpcrm.2014.9.

 

Asthma control and management in 8,000 European patients: the REcognise Asthma and LInk to Symptoms and Experience (REALISE) survey.

 
Price D1, Fletcher M2, van der Molen T3.
 

ABSTRACT
BACKGROUND:Asthma is one of the most common chronic diseases in the world, and previous studies have reported low levels of control. Recent developments in the availability and use of online sources of information about asthma might add to patients' knowledge and help improve control.
AIMS:To investigate whether asthma control has improved by assessing levels of symptoms, exacerbations and Global Initiative for Asthma-defined control in a real-life population of patients who use the Internet and social media, as well as evaluate patient perception of control and attitudes to asthma.
METHODS:Online surveys were conducted among 8,000 patients with asthma (aged 18-50 years, ⩾2 prescriptions in the previous 2 years, use of social media) from 11 European countries.
RESULTS:Levels of asthma control were low: 45% of respondents had uncontrolled asthma. Acute exacerbations were common: 44% of respondents reported having used oral steroids for asthma in the previous 12 months, 24% had visited an emergency department and 12% had been hospitalised. More than 80% of respondents (overall, and among those with a history of exacerbations) considered their asthma to be controlled. Of those who had an exacerbation requiring oral steroids, 75% regarded their asthma as not serious.
CONCLUSIONS:Asthma control in Europe remains poor; symptoms and exacerbations are common. Many patients regard their asthma as controlled and not serious despite experiencing symptoms and exacerbations. There is a need to assess patients' control, risk and inhaler technique, and to ensure that patients are prescribed, and take, appropriate treatments.
 

NPJ Prim Care Respir Med. 2014 Jun 12;24:14009. doi: 10.1038/npjpcrm.2014.9.