哮喘联盟

   摘要
   拉丁美洲儿童特别是波多黎各岛（PR）儿童间的儿童哮喘存在着差异，相比非拉丁美洲白人（NLW）儿童有更高的哮喘流行率和发病率。家庭必须平衡对哮喘儿童与其他儿童和家庭需求的关注，定义为“哮喘的平衡一体化”。
   本研究调查了罗德岛（RI）和波多黎各岛的非拉丁美洲白人（NLW）与拉丁美洲家庭中，文化因素对哮喘平衡一体化的影响，以及平衡一体化与哮喘发病率之间的关系。参加者包括来自RI与PR的NLW和拉丁裔背景的601名护理者及他们患有哮喘的孩子（7～16岁）。护理者及孩子完成了面试-管理评估和与家庭哮喘管理相关的半结构化面试。哮喘的平衡一体化根据民族/地点有显著不同（p<0.01），其中PR岛家庭的平衡一体化程度最低。平衡一体化越高，对哮喘药物治疗的关注度越低、RI拉丁裔家庭中西班牙语水平越精通、功能受限水平和过去一年中无急诊书水平越低（所有的p值<0.05）。
   结果表明，拉丁裔家庭在有其他孩子和家庭需求的环境下，可能更难适应于哮喘患儿。相信药物治疗和语言能力可能会解释这些差异。研究显示了继续了解家庭如何平衡哮喘与日常生活其他方面的重要性，因为文化上适当的干预来改善家庭对哮喘的调整，可能有助于减少儿童哮喘的发病率。
 

（林江涛 审校）
Fam Syst Health. 2014 Mar 10. [Epub ahead of print]

 

Pediatric Asthma Management Within Latino and Non-Latino White Families.
 

Everhart RS, Koinis Mitchell D, Friedman D, Kopel S, Canino G, Fritz G, McQuaid EL.
 

Abstract
Pediatric asthma disparities exist with Latino children, especially from Island Puerto Rico (PR), experiencing greater asthma prevalence and morbidity than non-Latino White (NLW) children. Families must balance attention to child asthma with other child and family needs, defined as the "balanced integration of asthma." This study examined the impact of culturally related factors on the balanced integration of asthma in NLW and Latino families in Rhode Island (RI) and PR, as well as associations between balanced integration and asthma morbidity. Participants included 601 caregivers and their children with asthma (7-16 years) from NLW and Latino backgrounds in RI and PR. Caregivers and children completed interview-administered assessments and a semistructured interview related to family asthma management. Balanced integration of asthma differed significantly by ethnic group/site (p < .001), with Island PR families having the lowest levels of balanced integration. Higher balanced integration was associated with fewer concerns about asthma medications, higher levels of Spanish proficiency in RI Latino families, lower levels of functional limitation, and no emergency department visits in the last year (all ps < .05). Findings suggest that Latino families may experience more difficulty adjusting to child asthma in the context of other child and family demands. Medication beliefs and language proficiency may begin to explain these differences. Our study suggests the importance of continuing to understand how families balance asthma with other aspects of daily life, as culturally appropriate interventions to improve family adjustment to asthma may serve to reduce child asthma morbidity.
 

Fam Syst Health. 2014 Mar 10. [Epub ahead of print]