哮喘联盟

   摘要
   背景和目的：尽管在发达国家中已有有效的治疗措施，并且对改善哮喘管理已投入巨资进行研究，但儿童期哮喘治疗仍然存在与用药有关的问题。本试验深入研究父母/看护人员和哮喘儿童对哮喘治疗用药的看法。
   方法：入选悉尼综合医疗中哮喘患儿及其父母，并对其进行半结构式定性访谈。对访谈内容进行记录、逐字翻译和进行主旨分析。
   结果：共进行52次访谈（26名父母/看护人员和26名哮喘儿童）。与儿童访谈的主要主题包括自我形象、抗拒药物治疗和用药上缺乏责任感。与父母/看护人员访谈的主要主题包括缺少清楚了解药物作用机制、使用困难、成本限制和对用药（使用质量）的信念。
   讨论：本试验是为数不多研究澳大利亚哮喘患儿药物治疗观点的研究。尽管已经对专业、靶向性循证哮喘管理投入巨资进行研究，哮喘患儿父母对其子女哮喘的了解深度不够。有效的交流药物使用，特别是鼓励哮喘患儿参与到哮喘治疗之中，可能是解决之道。
 

（苏楠 审校）
J Asthma. 2013 Jan 10. [Epub ahead of print]

 

Medication Use in Australian Children with Asthma: User's Perspective.
 
Grover C, Armour C, Asperen PP, Moles RJ, Saini B.

Source
Faculty of Pharmacy, The University of Sydney , Sydney, NSW , Australia.

Abstract 
BACKGROUND AND OBJECTIVES：Medication use-related issues remain problematic in childhood asthma despite effective treatment strategies and public investment into improved asthma management strategies in industrialized countries. This study aimed to carry out an in-depth exploration of the views of parents/carers and children with asthma on medication use.
METHODS：Semi-structured qualitative interviews were conducted with a purposive convenience sample of children with asthma and their parents recruited from general practices in Sydney. Interviews were tape-recorded, transcribed verbatim, and thematically analyzed.
RESULTS：A total of 52 interviews (26 parents/carers and 26 children with asthma) were conducted. Major themes which emerged from the children's interviews included issues such as self-image, resistance to medication use, and lack of responsibility in medication taking. Parental or carer issues included lack of clear understanding of how medications worked, as well as administration difficulties, cost constraints, and beliefs about medications contrary to quality use.
DISCUSSION：This is one of the few research studies exploring the viewpoint of children with asthma about their medications in Australia. Despite investment in dissemination of professional, targeted evidence-based asthma management strategies in healthcare, there seems to be a lack of depth in terms of what parents understand about their child's asthma. Effective communication about medication usage, especially the inclusion of the child in the consultation to empower them to be involved in their own asthma care, may be the answer.

J Asthma. 2013 Jan 10. [Epub ahead of print]