哮喘联盟

摘要
   横断面试验研究了家庭礼仪、凝聚、冲突和健康相关生活质量（特异性慢性健康环境和总体环境）与年轻哮喘患者的情感和行为问题之间的关系。参与者包括149名葡萄牙儿童和青少年，年龄在8～18岁之间，这些受试者诊断有哮喘，并在3个公立医院接受门诊治疗。结果显示，较强的家庭礼仪能预测更加正面的家庭环境（如：较高的凝聚水平和较低的冲突水平）、更好的健康相关生活质量和较少的情感和行为问题。此外，家庭凝聚和冲突介导了家庭礼仪和健康相关生活质量、情感和行为问题之间的关系。在对参与者的年龄、性别和哮喘严重程度进行校正后，结果不变。本研究的结果显示，家庭礼仪参与了年轻哮喘患者的适应过程，与正面家庭环境相关。对于有健康问题的家庭来说，由于家庭礼仪具有正面影响，而且是可调节因素，因此有必要基于家庭情况进行干预。
 

                                                                  (林江涛 审校)
 Fam Process. 2012 Dec;51(4):557-69. doi: 10.1111/j.1545-5300.2012.01416.x. Epub 2012 Sep 20.
 

Quality of life and adjustment in youths with asthma: the contributions of family rituals and the family environment.

Santos S, Crespo C, Silva N, Canavarro MC.

Source
Faculty of Psychology and Educational Sciences, University of Coimbra, Coimbra, Portugal.

Abstract
This cross-sectional study explored the relationships among family ritual meaning, cohesion, conflict, and health-related quality of life (both specific to chronic health conditions and in general), and the emotional and behavioral problems reported by youths with asthma. Participants included 149 Portuguese children and adolescents between the ages of 8 and 18 who had been diagnosed with asthma and attended outpatient services at three public hospitals. The results showed that stronger family ritual meaning predicted a more positive family environment (i.e., higher cohesion levels and lower conflict levels), better health-related quality of life, and fewer emotional and behavior problems in youths. Furthermore, family cohesion and conflict mediated the links between family ritual meaning and health-related quality of life, and emotional and behavioral problems. These results did not change after controlling for participant age, gender, and asthma severity. The findings of this study suggest that family ritual meaning contributes to the adaptation of youths with asthma via its positive association with the family environment. The implications for multicontextual interventions with families are briefly discussed with regard to the positive role of family rituals and of their potential as a modifiable factor in families with increased health challenges.

Fam Process. 2012 Dec;51(4):557-69. doi: 10.1111/j.1545-5300.2012.01416.x. Epub 2012 Sep 20.