城镇家庭中哮喘治疗的障碍：来自家庭看护者和儿童的观点
2009/11/17
目的：哮喘是儿童中最为常见的慢性疾病之一，在年幼、贫穷及非洲裔美国儿童中更为常见。而且在黑人儿童中急诊就诊次数、住院次数及死亡率更高。尽管诸多研究报道了哮喘的发病率及其相关治疗措施，但对于城镇低收入家庭儿童哮喘治疗的障碍，来自哮喘患儿及家庭看护者的观点研究较少。
方法：来自亚特兰大市区5类主要人群的28名参与者入选本次调查，本文对其数据进行定性分析。
结果：结果显示，家庭看护者和儿童认为每日使用吸入剂给药是家庭和学校哮喘治疗以及哮喘自我管理的最大障碍。环境控制主要受经济条件限制，造成城市环境治理难以实施。同时，家庭看护者和儿童尚存在心理压力，这对慢性疾病的处理也造成负担。
结论：城镇低收入家庭需要针对其自身特点、哮喘治疗障碍及挑战，制定相应的干预措施。我们的结果有助于增加城镇家庭哮喘儿童的治疗干预。
（苏楠 审校）
J Asthma. 2009 Sep;46(7):731-739.
Barriers to asthma management among urban families: caregiver and child perspectives.
Laster N, Holsey CN, Shendell DG, McCarty FA, Celano M.
OBJECTIVE: Asthma is one of the most common chronic diseases of childhood. Those particularly affected are young, poor, African American children. Moreover, rates of emergency department visits, hospitalizations, and mortality are substantially higher for black children. Despite the ample published research on asthma prevalence and asthma management interventions, there is little research available on barriers to asthma care among urban, low-income families as perceived by children with asthma and their caregivers.
METHODS: This qualitative study analyzed data from five focus groups conducted with 28 participants in metropolitan Atlanta.
RESULTS: This study found caregiver and child health beliefs and perceptions concerning the use of daily controller medications to be a significant barrier to asthma care and proper self-management at home and at school. Barriers to environmental control consisted mostly of financial constraints, which made residential environmental remediation activities difficult to implement. Psychological distress was prevalent among both children and caregivers, which demonstrated the burden associated with managing a chronic illness.
CONCLUSION: Families in urban, low-income communities require asthma management interventions tailored to their specific characteristics, barriers, and challenges. Our findings can be used to inform and enhance asthma management interventions for urban families with children with asthma.
J Asthma. 2009 Sep;46(7):731-9.
方法：来自亚特兰大市区5类主要人群的28名参与者入选本次调查，本文对其数据进行定性分析。
结果：结果显示，家庭看护者和儿童认为每日使用吸入剂给药是家庭和学校哮喘治疗以及哮喘自我管理的最大障碍。环境控制主要受经济条件限制，造成城市环境治理难以实施。同时，家庭看护者和儿童尚存在心理压力，这对慢性疾病的处理也造成负担。
结论：城镇低收入家庭需要针对其自身特点、哮喘治疗障碍及挑战，制定相应的干预措施。我们的结果有助于增加城镇家庭哮喘儿童的治疗干预。
（苏楠 审校）
J Asthma. 2009 Sep;46(7):731-739.
Barriers to asthma management among urban families: caregiver and child perspectives.
Laster N, Holsey CN, Shendell DG, McCarty FA, Celano M.
OBJECTIVE: Asthma is one of the most common chronic diseases of childhood. Those particularly affected are young, poor, African American children. Moreover, rates of emergency department visits, hospitalizations, and mortality are substantially higher for black children. Despite the ample published research on asthma prevalence and asthma management interventions, there is little research available on barriers to asthma care among urban, low-income families as perceived by children with asthma and their caregivers.
METHODS: This qualitative study analyzed data from five focus groups conducted with 28 participants in metropolitan Atlanta.
RESULTS: This study found caregiver and child health beliefs and perceptions concerning the use of daily controller medications to be a significant barrier to asthma care and proper self-management at home and at school. Barriers to environmental control consisted mostly of financial constraints, which made residential environmental remediation activities difficult to implement. Psychological distress was prevalent among both children and caregivers, which demonstrated the burden associated with managing a chronic illness.
CONCLUSION: Families in urban, low-income communities require asthma management interventions tailored to their specific characteristics, barriers, and challenges. Our findings can be used to inform and enhance asthma management interventions for urban families with children with asthma.
J Asthma. 2009 Sep;46(7):731-9.
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哮喘管理中布地奈德/福莫特罗维持和缓解治疗与传统最佳实践方法的比较
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糖皮质激素难治性哮喘新疗法的治疗靶点
