了解患者对哮喘控制的观念：一项定性研究
2018/08/16
摘要
尽管存在有效的治疗方法，但对于许多患者来说，哮喘控制并不是最理想的。患者的自我管理受到他们对哮喘与治疗看法的影响。本研究探讨了患者对哮喘控制的看法及其对自我管理行为的影响。从伦敦的一级和二级哮喘诊所中招募受试者（n = 42），每个受试者都接受定性访谈，探讨哮喘控制方面的观念与经验。目的性抽样确保了疾病严重程度、哮喘控制程度、年龄和社会经济状况的差异。本研究将扎根理论用于主题式的个案分析。确定了与哮喘控制和自我管理相关的五个主题：个人定义的哮喘控制、间歇性预防、为避免药物治疗的妥协的控制、哮喘控制过分强调哮药物制剂以及疾病复查在哮喘控制中的作用。在第一个主题中，一些受试者对哮喘症状分级有自我衡量标准，他们对哮喘“失控”的标准远高于哮喘控制测试（ACT）标准。这些研究结果为患者对哮喘控制的认知提供了新的见解。哮喘控制不理想通常会被哮喘患者习以为常。甄别哮喘自我管理中的障碍和动力对优化哮喘管理策略有重要意义。
Understanding patients’ perceptions of asthma control: a qualitative study.
Bidad. N.et al. Eur Respir J. 2018 May 19.
Abstract
Asthma control is suboptimal for many sufferers despite the existence of effective treatments. Patients' self-management is influenced by their perceptions of asthma and its treatment. This study explored sufferers' perceptions of asthma control and their influence on self-management behaviours. Participants (n=42) recruited from primary and secondary care asthma clinics in London each underwent a qualitative interview exploring perceptions and experiences of asthma control. Purposive sampling ensured variation in disease severity, degree of asthma control, age and socioeconomic status. Grounded theory was employed in thematic analysis of transcribed interviews. Five themes relating to perceptions of asthma control and self-management were identified: personal meaning of control, intermittent prevention, compromising control to avoid medication, pharmacological agents overemphasized in control and the role of asthma review in control. Within the first theme, some participants had an internal barometer of the level of symptoms that indicated their asthma was getting 'out of control' that was set much higher than Asthma Control Test criteria. The findings provide new insights into patient perceptions of asthma control. Symptoms indicative of poor control were often tolerated as part of living with asthma. Identification of barriers and drivers to self-management highlight potential targets for strategies aimed at optimising asthma management.
尽管存在有效的治疗方法，但对于许多患者来说，哮喘控制并不是最理想的。患者的自我管理受到他们对哮喘与治疗看法的影响。本研究探讨了患者对哮喘控制的看法及其对自我管理行为的影响。从伦敦的一级和二级哮喘诊所中招募受试者（n = 42），每个受试者都接受定性访谈，探讨哮喘控制方面的观念与经验。目的性抽样确保了疾病严重程度、哮喘控制程度、年龄和社会经济状况的差异。本研究将扎根理论用于主题式的个案分析。确定了与哮喘控制和自我管理相关的五个主题：个人定义的哮喘控制、间歇性预防、为避免药物治疗的妥协的控制、哮喘控制过分强调哮药物制剂以及疾病复查在哮喘控制中的作用。在第一个主题中，一些受试者对哮喘症状分级有自我衡量标准，他们对哮喘“失控”的标准远高于哮喘控制测试（ACT）标准。这些研究结果为患者对哮喘控制的认知提供了新的见解。哮喘控制不理想通常会被哮喘患者习以为常。甄别哮喘自我管理中的障碍和动力对优化哮喘管理策略有重要意义。
（复旦大学附属中山医院呼吸内科 包晨 摘译 杨冬 审校）
（Bidad. N.et al. Eur Respir J. 2018 May 19.）
（Bidad. N.et al. Eur Respir J. 2018 May 19.）
Understanding patients’ perceptions of asthma control: a qualitative study.
Bidad. N.et al. Eur Respir J. 2018 May 19.
Abstract
Asthma control is suboptimal for many sufferers despite the existence of effective treatments. Patients' self-management is influenced by their perceptions of asthma and its treatment. This study explored sufferers' perceptions of asthma control and their influence on self-management behaviours. Participants (n=42) recruited from primary and secondary care asthma clinics in London each underwent a qualitative interview exploring perceptions and experiences of asthma control. Purposive sampling ensured variation in disease severity, degree of asthma control, age and socioeconomic status. Grounded theory was employed in thematic analysis of transcribed interviews. Five themes relating to perceptions of asthma control and self-management were identified: personal meaning of control, intermittent prevention, compromising control to avoid medication, pharmacological agents overemphasized in control and the role of asthma review in control. Within the first theme, some participants had an internal barometer of the level of symptoms that indicated their asthma was getting 'out of control' that was set much higher than Asthma Control Test criteria. The findings provide new insights into patient perceptions of asthma control. Symptoms indicative of poor control were often tolerated as part of living with asthma. Identification of barriers and drivers to self-management highlight potential targets for strategies aimed at optimising asthma management.
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重症哮喘问卷(SAQ)的构建与获批
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使用混合模型作为映射工具方法的进展: 在哮喘患者中将 AQLQ-S 与 EQ-5D-5L 和 HUI3进行映射
