哮喘联盟

   摘要
   本研究目的是评估欧洲儿科门诊在关爱哮喘儿童中的作用，特别是在治疗教育方面。.我们进行了一项具有观察性，说明性，回顾性和匿名性的研究。436家来自比利时、法国、德国、意大利、卢森堡和斯洛文尼亚的儿科门诊被要求参与调查，（每家医院）提供3名患有持续哮喘的6岁以上，曾被随访至少6个月的儿童信息。我们分析了儿科医生的资料，和他们在儿童的治疗教育中扮演的角色。 277名儿科医生(64%)完成调查： 81% 为初级保健儿科医生；46%通过网络参与; 4% 曾接受过患者治疗教育培训；69% 每月随访超过5名哮喘儿童, 并且随访时间较长(7 ± 4 年)。总共分析了684名儿童资料。 下列调查结果均未达成一致，包括个性化行动计划的制定(60-88%), 培养患儿测定且理解呼气峰流速(31-99%), 以及在后续治疗方案中进行肺功能检查(62-97%). 但儿科医生对于患儿病情和治疗方面的教育看法较一致(99%),比如吸入技术 (96%), 和提高患儿在高危状况时应有的预防能力 (97%). 本研究强调了欧洲儿科医生在哮喘儿童关爱方面扮演重要角色,但他们缺乏对患儿进行教育培训。哮喘患儿的治疗教育需要相应方案与工具， 而这些资源应当纳入初级卫生保健, 从而提高到与欧洲总体水平相当。
 

（苏欣 审校）
PLoS One. 2015 Jun 10;10(6):e0129198. doi: 10.1371/journal.pone.0129198. eCollection 2015.
 

Educating Asthmatic Children in European Ambulatory Pediatrics: Facts and Insights.
 

Robberecht MN1, Beghin L2, Deschildre A3, Hue V3, Reali L4, Plevnik-Vodušek V5, Moretto M6, Agustsson S7,Tockert E7, Jäger-Roman E8, Deplanque D9, Najaf-Zadeh A3, Martinot A10.
 

Abstract
The aim of this study was to assess the role of European ambulatory pediatricians in caring for asthmatic children, especially in terms of their therapeutic education. We developed a survey that was observational, declarative, retrospective and anonymous in nature. 436 ambulatory pediatricians in Belgium, France, Germany, Italy, Luxembourg and Slovenia were asked to participate in the survey providing information on three children over 6 years old suffering from persistent asthma, who had been followed for at least 6 months. We considered the pediatricians' profile, and their role in the therapeutic education of children. 277 pediatricians (64%) responded: 81% were primary care pediatricians; 46% participated in networks; 4% had specific training in Therapeutic Patient Education; 69% followed more than 5 asthmatic children per month, and over long periods (7 ± 4 years). The profiles of 684 children were assessed. Answers diverged concerning the provision of a Personalized Action Plan (60-88%), training the child to measure and interpret his Peak Expiratory Flow (31-99%), and the prescription of pulmonary function tests during the follow-up programme of consultations (62-97%). Answers converged on pediatricians' perception of their role in teaching children about their condition and its treatment (99%), about inhalation techniques (96%), and in improving the children's ability to take preventive measures when faced with risk situations (97%). This study highlights the role of European pediatricians in caring for asthmatic children, and their lack of training in Therapeutic Patient Education. Programmes and tools are required in order to train ambulatory pediatricians in Therapeutic Patient Education, and such resources should be integrated into primary health care, and harmonized at the European level.
 

PLoS One. 2015 Jun 10;10(6):e0129198. doi: 10.1371/journal.pone.0129198. eCollection 2015.